EVERY bride wants her special day to revolve around her, but one mum is using her wedding day to raise awareness of a rare disease affecting her six-year-old daughter - by asking all her guests to wear orange.

Kaycee Bradshaw, who is the youngest of six siblings from Sutton, was diagnosed with Batten disease in 2016.

Children with the condition rarely survive past the age of 12. The disease causes patients to have seizures, muscle spasms, progressive dementia, visual impairment leading to blindness. It also results in the loss of speech and mobility. Kaycee is currently one of five children receiving an enzyme replacement treatment called cerliponase alfa, which slows the effects of the incurable condition.

To raise awareness of the disease, and the treatment that is prolonging her life, her mum Claire Bradshaw and step-dad Greg Riley are asking their wedding guests to wear something orange - the colour of the awareness ribbon for Batten disease - on their special day this Saturday, October 27.

Claire, 45, said: “When you have a child with a life limiting disease you celebrate all the milestones, we didn’t want to wait to get married and for her to maybe not be here.

“It’s also her six and a half birthday which is a big milestone for us, I hope everyone turns up with something orange on in support of our Kaycee.

“We even have orange cakes, it’s just as much her special day as ours.”