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Jasmine's last dream

7:22am Thursday 13th March 2008

comment Comments (60)   Have your say »

By Stephen Mather »

HER big beaming smile hides the heartbreaking story of a little girl who has been given just months to live.

Days after posing for this snapshot in Disneyland Paris, the parents of brave little Jasmine Beedles were told that their daughter would soon lose her courageous fight for life.

Now they are desperate to take her once more to the French resort so that Jasmine can celebrate her sixth and final birthday there, but they need £5,000 to make her dream come true.

Jasmine, whom mum Sam describes as happy and independent, suffers from an ultra rare condition, DiGeorge syndrome, which affects her heart, lungs and bowel.

The brave little battler was not expected to see her first Christmas but has clung on to life since then.

Now this news has hit the family hard.

Sam (25), from Sutton Manor, explained: "Ben and I knew she wouldn't have a long life, but it is awful to hear it said to you.

"Two days after coming back from France, doctors called us into a meeting and said she may have just months to live because her heart and lungs have got significantly worse.

"We have to go back to the hospital next week to do an end of life plan, which we are both dreading. We have noticed her getting worse, because she can't do the things she used to do."

After watching Jasmine enjoy their Disney stay, dedicated parents Ben (27) and Sam, whose daily routine involves giving her medicine every three hours as well as making sure her chest and lungs are clear, are desperate to take her back for her birthday in June.

Sam explained: "We were planning on taking Jasmine back next year, but since we have been told the news we want to get her there as soon as possible as we know time is short.

"Jasmine kept asking to stay in the Pink Hotel when we were there, but when we priced this up it is going to cost £5,000 because we need to take two carers.

"We are looking to raise this money for her, as it will be her last holiday and we want to make it as special as possible, because she deserves it."

Plans to help the young family raise the cash are already underway.

Jasmine's uncle Grant Williams, a public service lecturer at St Helens College, who hit the headlines in 2006 when he completed an incredible 13,000 press ups in 24 hours to raise money for disabled toddler Callum Boan, is looking to host a sponsored event at the college and Sam's sister Melanie is already drumming up support among her colleagues at the Somerfield distribution centre at Lea Green.

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Your Say Your Star

gerard p plummer, ireland says...
10:45pm Thu 13 Mar 08

hi ben and sam we are all thinking of you
in ireland and an irish blessing to you and your famalies.

Report this post »

gerard p plummer, ireland says...
10:45pm Thu 13 Mar 08

hi ben and sam we are all thinking of you
in ireland and an irish blessing to you and your famalies.

Report this post »

gerard p plummer, ireland says...
10:45pm Thu 13 Mar 08

hi ben and sam we are all thinking of you
in ireland and an irish blessing to you and your famalies.

Report this post »

gerard p plummer, ireland says...
10:45pm Thu 13 Mar 08

hi ben and sam we are all thinking of you
in ireland and an irish blessing to you and your famalies.

Report this post »

karen keegan, crank st helens says...
11:25pm Thu 13 Mar 08

hi jaz, you are going to have a great time on your birthday, and we will make your birthday party a real disney dream. love nanny karen and grandad dave

Report this post »

karen keegan, crank st helens says...
11:25pm Thu 13 Mar 08

hi jaz, you are going to have a great time on your birthday, and we will make your birthday party a real disney dream. love nanny karen and grandad dave

Report this post »

karen keegan, crank st helens says...
11:25pm Thu 13 Mar 08

hi jaz, you are going to have a great time on your birthday, and we will make your birthday party a real disney dream. love nanny karen and grandad dave

Report this post »

karen keegan, crank st helens says...
11:25pm Thu 13 Mar 08

hi jaz, you are going to have a great time on your birthday, and we will make your birthday party a real disney dream. love nanny karen and grandad dave

Report this post »

Yvonne Molyneux, st helens says...
7:48am Fri 14 Mar 08

Hi jasmine,glad to hear that you had a great time in disney land, We all miss you here at rainbows and hope that one-day you can call in to see us all, so we can all see your smiley face again.lots of hugs and kisses from everyone at Rainbows

Report this post »

Yvonne Molyneux, st helens says...
7:48am Fri 14 Mar 08

Hi jasmine,glad to hear that you had a great time in disney land, We all miss you here at rainbows and hope that one-day you can call in to see us all, so we can all see your smiley face again.lots of hugs and kisses from everyone at Rainbows

Report this post »

Yvonne Molyneux, st helens says...
7:48am Fri 14 Mar 08

Hi jasmine,glad to hear that you had a great time in disney land, We all miss you here at rainbows and hope that one-day you can call in to see us all, so we can all see your smiley face again.lots of hugs and kisses from everyone at Rainbows

Report this post »

Yvonne Molyneux, st helens says...
7:48am Fri 14 Mar 08

Hi jasmine,glad to hear that you had a great time in disney land, We all miss you here at rainbows and hope that one-day you can call in to see us all, so we can all see your smiley face again.lots of hugs and kisses from everyone at Rainbows

Report this post »

Norman Webster, Maghull, Liverpool says...
10:59am Fri 14 Mar 08

It is so sad to read about the impending death of such a brave little girl. We know that death is inevitable for all of us but when it happens to a child it is so much harder to bear. Let not just our thoughts be with Jasmine and her family, let our actions speak for us as well and try and give this brave little girl some small comfort before the end of her very short life.

Report this post »

Norman Webster, Maghull, Liverpool says...
10:59am Fri 14 Mar 08

It is so sad to read about the impending death of such a brave little girl. We know that death is inevitable for all of us but when it happens to a child it is so much harder to bear. Let not just our thoughts be with Jasmine and her family, let our actions speak for us as well and try and give this brave little girl some small comfort before the end of her very short life.

Report this post »

Norman Webster, Maghull, Liverpool says...
10:59am Fri 14 Mar 08

It is so sad to read about the impending death of such a brave little girl. We know that death is inevitable for all of us but when it happens to a child it is so much harder to bear. Let not just our thoughts be with Jasmine and her family, let our actions speak for us as well and try and give this brave little girl some small comfort before the end of her very short life.

Report this post »

Norman Webster, Maghull, Liverpool says...
10:59am Fri 14 Mar 08

It is so sad to read about the impending death of such a brave little girl. We know that death is inevitable for all of us but when it happens to a child it is so much harder to bear. Let not just our thoughts be with Jasmine and her family, let our actions speak for us as well and try and give this brave little girl some small comfort before the end of her very short life.

Report this post »

Mike, Bristol says...
5:51pm Fri 14 Mar 08

This has just come to our notice at MaxAppeal! the national charity dedicated to 22q11/Di George syndrome.
We want to help in all ways we can. We are only a small charity but we have some very useful contacts.
Could mum or dad contact us at
www.maxappeal.org.uk

Thanks

Report this post »

Mike, Bristol says...
5:51pm Fri 14 Mar 08

This has just come to our notice at MaxAppeal! the national charity dedicated to 22q11/Di George syndrome.
We want to help in all ways we can. We are only a small charity but we have some very useful contacts.
Could mum or dad contact us at
www.maxappeal.org.uk

Thanks

Report this post »

Mike, Bristol says...
5:51pm Fri 14 Mar 08

This has just come to our notice at MaxAppeal! the national charity dedicated to 22q11/Di George syndrome.
We want to help in all ways we can. We are only a small charity but we have some very useful contacts.
Could mum or dad contact us at
www.maxappeal.org.uk

Thanks

Report this post »

Mike, Bristol says...
5:51pm Fri 14 Mar 08

This has just come to our notice at MaxAppeal! the national charity dedicated to 22q11/Di George syndrome.
We want to help in all ways we can. We are only a small charity but we have some very useful contacts.
Could mum or dad contact us at
www.maxappeal.org.uk

Thanks

Report this post »

Lyndsey Gildea, Liverpool says...
12:13pm Sun 16 Mar 08

Hello Ben & Sam, I wish you all the luck in the world and I hope you raise lots of money to take your gorgeous Daughter back to Disney Land Paris. Just to let you know we are thinking of you all and how brave is your little girl. xxx

Report this post »

Lyndsey Gildea, Liverpool says...
12:13pm Sun 16 Mar 08

Hello Ben & Sam, I wish you all the luck in the world and I hope you raise lots of money to take your gorgeous Daughter back to Disney Land Paris. Just to let you know we are thinking of you all and how brave is your little girl. xxx

Report this post »

Lyndsey Gildea, Liverpool says...
12:13pm Sun 16 Mar 08

Hello Ben & Sam, I wish you all the luck in the world and I hope you raise lots of money to take your gorgeous Daughter back to Disney Land Paris. Just to let you know we are thinking of you all and how brave is your little girl. xxx

Report this post »

Lyndsey Gildea, Liverpool says...
12:13pm Sun 16 Mar 08

Hello Ben & Sam, I wish you all the luck in the world and I hope you raise lots of money to take your gorgeous Daughter back to Disney Land Paris. Just to let you know we are thinking of you all and how brave is your little girl. xxx

Report this post »

Andrea, St Helens# says...
1:20pm Sun 16 Mar 08

I worked with you Ben at Lingley Mere. Me and my hubby saw Jasmine when she was just a few weeks old in the Doctors. She was looking up at her Mum and cooing. I thought how adorable she was. I am praying for you all and sending love & cuddles to Jasmine. Im sure she will get her wish. God Bless x x x x x x x x x x x

Report this post »

Andrea, St Helens# says...
1:20pm Sun 16 Mar 08

I worked with you Ben at Lingley Mere. Me and my hubby saw Jasmine when she was just a few weeks old in the Doctors. She was looking up at her Mum and cooing. I thought how adorable she was. I am praying for you all and sending love & cuddles to Jasmine. Im sure she will get her wish. God Bless x x x x x x x x x x x

Report this post »

Andrea, St Helens# says...
1:20pm Sun 16 Mar 08

I worked with you Ben at Lingley Mere. Me and my hubby saw Jasmine when she was just a few weeks old in the Doctors. She was looking up at her Mum and cooing. I thought how adorable she was. I am praying for you all and sending love & cuddles to Jasmine. Im sure she will get her wish. God Bless x x x x x x x x x x x

Report this post »

Andrea, St Helens# says...
1:20pm Sun 16 Mar 08

I worked with you Ben at Lingley Mere. Me and my hubby saw Jasmine when she was just a few weeks old in the Doctors. She was looking up at her Mum and cooing. I thought how adorable she was. I am praying for you all and sending love & cuddles to Jasmine. Im sure she will get her wish. God Bless x x x x x x x x x x x

Report this post »

debbie middlehurst, skelmersdale says...
7:17pm Sun 16 Mar 08

hi Sam and Ben I work with Karen and she told me your sad news. The love of my family is with you always. Jasmin is really remarkable and I know how proud of her you are.I hope she gets to Disneyland again she deserves it so much. If there is a charity event coming up tell Karen and if we can come we will. Love and best wishes always and our thoughts are with you all. Love Debbiexxx

Report this post »

debbie middlehurst, skelmersdale says...
7:17pm Sun 16 Mar 08

hi Sam and Ben I work with Karen and she told me your sad news. The love of my family is with you always. Jasmin is really remarkable and I know how proud of her you are.I hope she gets to Disneyland again she deserves it so much. If there is a charity event coming up tell Karen and if we can come we will. Love and best wishes always and our thoughts are with you all. Love Debbiexxx

Report this post »

debbie middlehurst, skelmersdale says...
7:17pm Sun 16 Mar 08

hi Sam and Ben I work with Karen and she told me your sad news. The love of my family is with you always. Jasmin is really remarkable and I know how proud of her you are.I hope she gets to Disneyland again she deserves it so much. If there is a charity event coming up tell Karen and if we can come we will. Love and best wishes always and our thoughts are with you all. Love Debbiexxx

Report this post »

debbie middlehurst, skelmersdale says...
7:17pm Sun 16 Mar 08

hi Sam and Ben I work with Karen and she told me your sad news. The love of my family is with you always. Jasmin is really remarkable and I know how proud of her you are.I hope she gets to Disneyland again she deserves it so much. If there is a charity event coming up tell Karen and if we can come we will. Love and best wishes always and our thoughts are with you all. Love Debbiexxx

Report this post »

kate williams, liverpool says...
9:46am Tue 18 Mar 08

jasmime
we all love you so much!
lots of love always
auntie kate, uncle grant and olivia xx

Report this post »

kate williams, liverpool says...
9:46am Tue 18 Mar 08

jasmime
we all love you so much!
lots of love always
auntie kate, uncle grant and olivia xx

Report this post »

kate williams, liverpool says...
9:46am Tue 18 Mar 08

jasmime
we all love you so much!
lots of love always
auntie kate, uncle grant and olivia xx

Report this post »

kate williams, liverpool says...
9:46am Tue 18 Mar 08

jasmime
we all love you so much!
lots of love always
auntie kate, uncle grant and olivia xx

Report this post »

Bernard Stedman, Birmingham & Surrey, UK says...
4:50pm Wed 19 Mar 08

Max Appeal is the UK charity associated with DiGeorge Syndrome, which Jasmine was born with. With her parents' consent we have set up a fundraising page for Jasmine:

www.justgiving.com/j
asminesholiday

Report this post »

Bernard Stedman, Birmingham & Surrey, UK says...
4:50pm Wed 19 Mar 08

Max Appeal is the UK charity associated with DiGeorge Syndrome, which Jasmine was born with. With her parents' consent we have set up a fundraising page for Jasmine:

www.justgiving.com/j
asminesholiday

Report this post »

Bernard Stedman, Birmingham & Surrey, UK says...
4:50pm Wed 19 Mar 08

Max Appeal is the UK charity associated with DiGeorge Syndrome, which Jasmine was born with. With her parents' consent we have set up a fundraising page for Jasmine:

www.justgiving.com/j
asminesholiday

Report this post »

Bernard Stedman, Birmingham & Surrey, UK says...
4:50pm Wed 19 Mar 08

Max Appeal is the UK charity associated with DiGeorge Syndrome, which Jasmine was born with. With her parents' consent we have set up a fundraising page for Jasmine:

www.justgiving.com/j
asminesholiday

Report this post »

Tracey Hennighan, Royston Herts England says...
8:35pm Mon 24 Mar 08

Our love to you all Cerys my daughter has VCFS too! Have a great time!Have you seen the just giving website that Max Appeal set up it's doing very well!!

Report this post »

Tracey Hennighan, Royston Herts England says...
8:35pm Mon 24 Mar 08

Our love to you all Cerys my daughter has VCFS too! Have a great time!Have you seen the just giving website that Max Appeal set up it's doing very well!!

Report this post »

Tracey Hennighan, Royston Herts England says...
8:35pm Mon 24 Mar 08

Our love to you all Cerys my daughter has VCFS too! Have a great time!Have you seen the just giving website that Max Appeal set up it's doing very well!!

Report this post »

Tracey Hennighan, Royston Herts England says...
8:35pm Mon 24 Mar 08

Our love to you all Cerys my daughter has VCFS too! Have a great time!Have you seen the just giving website that Max Appeal set up it's doing very well!!

Report this post »

Damian Cummings, st helens says...
9:47am Tue 25 Mar 08

Hello. We are a service in St. Helens for young people with comlex needs and we will be undertaking a sponsored walk on behalf of this worthy cause with the young people we support. If anybody is interested to sponsor please email me directly at hwcgscare@ukonline.c
o.uk - Regards and warmest wishes Damian Cummings.

Report this post »

Damian Cummings, st helens says...
9:47am Tue 25 Mar 08

Hello. We are a service in St. Helens for young people with comlex needs and we will be undertaking a sponsored walk on behalf of this worthy cause with the young people we support. If anybody is interested to sponsor please email me directly at hwcgscare@ukonline.c
o.uk - Regards and warmest wishes Damian Cummings.

Report this post »

Damian Cummings, st helens says...
9:47am Tue 25 Mar 08

Hello. We are a service in St. Helens for young people with comlex needs and we will be undertaking a sponsored walk on behalf of this worthy cause with the young people we support. If anybody is interested to sponsor please email me directly at hwcgscare@ukonline.c
o.uk - Regards and warmest wishes Damian Cummings.

Report this post »

Damian Cummings, st helens says...
9:47am Tue 25 Mar 08

Hello. We are a service in St. Helens for young people with comlex needs and we will be undertaking a sponsored walk on behalf of this worthy cause with the young people we support. If anybody is interested to sponsor please email me directly at hwcgscare@ukonline.c
o.uk - Regards and warmest wishes Damian Cummings.

Report this post »

margaret norton, st helens says...
1:55pm Fri 28 Mar 08

hi sam and ben good luck on your adventure with jasmine i will try to raise some money in the pub were i work (green room) this is a phone no of afriend of mine she runs a charity for st helens sick children in need of help the charity is in memory of her own daughter i hope she can help you give her a ring and see. GOOD LUCK!

marjorie hurst
st helens (01744)734155

Report this post »

margaret norton, st helens says...
1:55pm Fri 28 Mar 08

hi sam and ben good luck on your adventure with jasmine i will try to raise some money in the pub were i work (green room) this is a phone no of afriend of mine she runs a charity for st helens sick children in need of help the charity is in memory of her own daughter i hope she can help you give her a ring and see. GOOD LUCK!

marjorie hurst
st helens (01744)734155

Report this post »

margaret norton, st helens says...
1:55pm Fri 28 Mar 08

hi sam and ben good luck on your adventure with jasmine i will try to raise some money in the pub were i work (green room) this is a phone no of afriend of mine she runs a charity for st helens sick children in need of help the charity is in memory of her own daughter i hope she can help you give her a ring and see. GOOD LUCK!

marjorie hurst
st helens (01744)734155

Report this post »

margaret norton, st helens says...
1:55pm Fri 28 Mar 08

hi sam and ben good luck on your adventure with jasmine i will try to raise some money in the pub were i work (green room) this is a phone no of afriend of mine she runs a charity for st helens sick children in need of help the charity is in memory of her own daughter i hope she can help you give her a ring and see. GOOD LUCK!

marjorie hurst
st helens (01744)734155

Report this post »

Laura, Rainbow Leader, says...
2:35pm Fri 28 Mar 08

We are all thinking of you at Rainbows, Jasmine, and are thinking of ways we can help you to go to Disneyland. Have you tried the Make a Wish organisation? http://www.make-a-wi
sh.org.uk/wishes/cri
teria/
x x x x x

Report this post »

Laura, Rainbow Leader, says...
2:35pm Fri 28 Mar 08

We are all thinking of you at Rainbows, Jasmine, and are thinking of ways we can help you to go to Disneyland. Have you tried the Make a Wish organisation? http://www.make-a-wi
sh.org.uk/wishes/cri
teria/
x x x x x

Report this post »

Laura, Rainbow Leader, says...
2:35pm Fri 28 Mar 08

We are all thinking of you at Rainbows, Jasmine, and are thinking of ways we can help you to go to Disneyland. Have you tried the Make a Wish organisation? http://www.make-a-wi
sh.org.uk/wishes/cri
teria/
x x x x x

Report this post »

Laura, Rainbow Leader, says...
2:35pm Fri 28 Mar 08

We are all thinking of you at Rainbows, Jasmine, and are thinking of ways we can help you to go to Disneyland. Have you tried the Make a Wish organisation? http://www.make-a-wi
sh.org.uk/wishes/cri
teria/
x x x x x

Report this post »

Mike, Bristol says...
3:34pm Wed 2 Apr 08

Please see other (later) pages for our thanks to you all - from Maxappeal! charity.

Report this post »

Mike, Bristol says...
3:34pm Wed 2 Apr 08

Please see other (later) pages for our thanks to you all - from Maxappeal! charity.

Report this post »

Mike, Bristol says...
3:34pm Wed 2 Apr 08

Please see other (later) pages for our thanks to you all - from Maxappeal! charity.

Report this post »

Mike, Bristol says...
3:34pm Wed 2 Apr 08

Please see other (later) pages for our thanks to you all - from Maxappeal! charity.

Report this post »

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PICTURED: (above) Jasmine with 'Cinderella' at Disneyland Paris, where Samantha and Ben want to take her one last time. Thr other pictures show the brave youngster enjoying the holiday, including giving Mickey Mouse a big kiss.

PICTURED: (above) Jasmine with 'Cinderella' at Disneyland Paris, where Samantha and Ben want to take her one last time. Thr other pictures show the brave youngster enjoying the holiday, including giving Mickey Mouse a big kiss.



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