A MUM who was told her son was just a “lazy baby” is encouraging others to make as many memories as they can after learning that he has a terminal illness.

Toni Bluck from Haydock was concerned when her son Caelan was not hitting any of the typical milestones at eight-months-old.

Despite taking him to the doctors several times, she says that she was not “taken seriously as I was a first time mum and the doctors just kept saying that Caelan was a lazy baby.”

It was only when he lost the ability to roll, sit and keep his head up just before he was one, that she says that doctors started to pay attention.

Toni, 21, said: “When he rolled onto his stomach the arm he rolled over did not come out from under his body.

“Caelan could not sit up for long periods of time and as the months went on he got weaker and weaker.”

After he had several examinations and scans at Alder Hey Children’s Hospital, Toni eventually got a phone call from the Royal Manchester Children’s Hospital urging her to bring Caelan in immediately.

Caelan was diagnosed with non-classic infantile Pompe disease which is a genetic muscle weakness disease caused by the build up of complex sugars.

Most children with the condition do not survive to adulthood.

Over a few months Caelan deteriorated and the now three-year-old has been living at the hospital for two years.

He cannot move unaided, use his legs and arms or drink and eat through his mouth.

He also uses sign language to communicate.

Toni said: “Pompe disease for Caelan does mean that he wont get to grow up to be an adult.

“It’s not always easy but I just live for now, if Caelan is smiling so do I.

“Always believe in your child, never doubt their ability to fight disease, but don’t spend too much time worrying about what’s going to happen.

“You could miss what’s right in front of you.

“Love your child like you’ve never loved anyone – and make as many memories as possible and take pictures.”